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Episode #9 Patient Centered View of Narcolepsy
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The White Noise Podcast द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री The White Noise Podcast या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy.
SHOW NOTES
- Introduction of Guest: (5:00)
- Matt’s Best Advice (11:00)
- Matt’s Role in the sleep community (12:40)
- Matt’s symptoms onset (15:00)
- Matt’s additional symptoms (19:00)
- Matt’s onset of cataplexy (23:00)
- Cataplexy triggers (24:45)
- Delayed diagnosis: (27:00)
- Nightmares and sleep paralysis onset (31:30)
- One more question about sleep paralysis (34:15)
- Partial cataplexy (37:50)
- Diagnosis and Management: (39:00)
- Pitolisant (43:45)
- Strategic Napping (44:15)
- Bitter Pills (45:15)
- AASM revised Guidelines (47:22)
- Sodium Oxybate and Cataplexy (49:00)
- Finding a sleep physician to manage narcolepsy (55:00)
- Sleep apnea (60:30)
- MSLT (62:15)
- Treat Clinically (65:00)
- 4 pillars of management (66:00)
- Patient request/feedback (68:00)
- Academic vs private practice (71:30)
Links to articles and guidelines referenced in this episode are included
Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.
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