Overcoming GI Challenges with Amalia, the Ostomy Dietitian

The Beautiful Bag

In this week's Episode I speak with Amalia (The Ostomy Dietitian)

Amalia's Early Health Struggles

Amalia discusses her lifelong GI problems, from childhood to college, including vomiting, reflux, and dietary restrictions. She mentions her appendectomy during her college years.

The Onset of Severe GI Symptoms

Amalia's journey into adulthood is marked by the escalation of GI symptoms. She talks about her early career as a dietitian in a high-stress environment and the daily struggles she faced with pain, mucus, blood, and frequent bowel movements. The challenge of advocating for herself during medical appointments is highlighted.

Misdiagnoses and Continued Struggles

Amalia's frustration with repeated misdiagnoses and lack of effective treatment is shared. The doctors' focus on her rectum is mentioned, despite escalating symptoms. She describes living with prolapse, fissures, and fistulas, all abnormal for pelvic floor issues. The couple's move to Canada and her experiences with the healthcare system there are discussed.

The Turning Point and the Decision to Act

Amalia's decision to seek specialized care in the U.S. after facing delays in Canada is explained. She emphasizes the importance of taking control of her health and discusses her husband's initial shock at the severity of her condition. The toll of her condition on her mental and physical health is highlighted.

Finding Hope Through Surgery

Amalia's journey to the Cleveland Clinic in Florida and her encounter with a renowned colorectal surgeon are discussed. Her decision to undergo a temporary ileostomy is explained, despite having no formal diagnosis. The relief she experienced after surgery and the end of eight years of pain are highlighted. Amelia reflects on the resilience of her personality.

The Post-Surgery Recovery and Challenges

Amalia shares her recovery experience, including a month-long hospital stay. The adjustment to life with an ileostomy is discussed. Unexpected abdominal pain after surgery and its connection to her first-ever period at age 29 are mentioned. The importance of her medical team's support during the recovery period is emphasized.

Continuing the Journey

Amalia's determination to start a family and her pursuit of this goal are discussed, highlighting her husband's supportive role. The decision to have her colon removed and her path to healing and starting a family are explored.

The Surprising Second Pregnancy

Amalia shares her remarkable experience of becoming pregnant naturally after deciding to pursue surrogacy. The challenges of managing pregnancy with an ostomy and diversion colitis are discussed.

The Struggles Continue

Amalia discusses the difficulties she faced with her second pregnancy, including blockages and preterm birth. The emotional toll of being separated from her newborn son, who needed NICU care, is explored. Her determination to continue breastfeeding despite the challenges is mentioned.

Unexpected Complications and Another Surgery

Amalia reveals that she faced unexpected issues with her ostomy, leading to the need for revision surgery. The emotional and physical toll of undergoing surgery with a young baby at home is discussed. The importance of resilience in the face of ongoing health challenges is emphasized.

Wrapping Up and Looking to the Future

LeeAnne and Amalia reflect on the incredible journey Amelia has been on, from ostomy surgery to motherhood. Amelia shares her perspective on the unique gifts and challenges of her experience.

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