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S1 E4 - Rare Disease Day with Jo Balfour
Manage episode 407172593 series 3558520
Karger Publishers द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री Karger Publishers या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
In this episode of Karger’s The Waiting Room Podcast, we speak with Jo Balfour, the founding member and Managing Director of the UK-based charity Cambridge Rare Disease Network (CRDN). Jo shares with us details of the Action for Rare Diseases Empowerment (ARDEnt) project and its aim to shed light on the unseen impact of the pandemic on people living with rare conditions to protect the existing services for them and identify what lessons can be learned. To learn more about the ARDEnt project and the corresponding report including its findings visit www.camraredisease.org For more podcast episodes from Karger including additional interviews on the subject or rare diseases visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com
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