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The Importance of Diverse Representation in Clinical Trials
Manage episode 367968820 series 2923408
Ronda F Jefferson द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री Ronda F Jefferson या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
On this episode, I will be speaking with Erica Courtenay-Mann, an advocate for patients with Sarcoidosis. She gives talks regarding what it's like to live with chronic illnesses & she is involved in the Women of Color Committee and the ACTe Now! Patient Committee. She is a strong voice to raise awareness about the importance of clinical trials, especially in communities that are underrepresented. With each step taken towards more inclusive clinical trials and the data gained from them, we grow closer to a better understanding of how “snowflake" diseases progress.
Links for further information:
https://www.stopsarcoidosis.org/
Mayo Clinic - Information on Clinical Trials and Sarcoidosis Research
Contact Info -
Podcast: See the Invisible: Living with an Invisible or Rare Disease
Contact: Email: Seetheinvisible2020@gmail.com
Twitter: Ronda F Jefferson (@CInvisible2020) / Twitter
Facebook: SeetheInvisible2020 | Facebook
Instagram: Ronda Jefferson (@seetheinvisible2020) • Instagram photos and videos
YouTube: SeeTheInvisible - YouTube
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