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Susan MSUD chair for PKU and Allied Disorders talks about MSUD
Manage episode 367774921 series 3485028
Joanna द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री Joanna या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
This video is the third episode of Nutrition Equity a podcast devoloped to promote the Medical Nutriiton Equity Act . In this episode we talk with Susan Neeleman of the MSUD Community. Susan is the Vice President of the New England Connection for PKU and Allied Disorders (NECPAD), the editor cf tShe is a powerful leader in the MSUD as well as the Metabolic Community as s whole. She MSUD Family Support Group news letter, and she is also the MSUD Chair in Canada.
अध्यायों
1. Susan MSUD chair for PKU and Allied Disorders talks about MSUD (00:00:00)
2. Maple Syrup Urine Disease defined (00:02:05)
3. MSUD Vs Diabetes (00:03:23)
4. Diagnosis journey with MSUD (00:04:03)
5. Role as MSUD editor (00:05:58)
6. Canada MSUD Plus Chair role (00:06:42)
7. Role as Vice President of New England Connection For PKU and Alleid Disorders (00:07:17)
8. Challenges for MSUD patients (00:07:51)
9. Barriers to care for MSUD patients (00:09:31)
10. Key areas of research (00:14:02)
11. Future of MSUD Access to Nutritional Support and Resourdes (00:15:36)
12. Success stories (00:16:17)
13. Advice and resources for newly diagnosed MSUD patients (00:17:39)
14. Hopes for the future (00:18:59)
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