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Ethical Use of Pediatric Genetic Data with Sara Huston, MS
Manage episode 430654246 series 3561737
Eric Goodwin and Robert H. Lurie Children's Hospital of Chicago द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री Eric Goodwin and Robert H. Lurie Children's Hospital of Chicago या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
Genetic testing has been transformative in many areas of pediatrics, such as diagnosing rare conditions and syndromes. But in other cases, such as the processing of immigrants at the border or of children separated from families during war, genetic testing and the collection of biometric data in children can lead to an overreach of the government or law enforcement in criminal or humanitarian cases. Sara Huston, MS, Principal Investigator of the Genetics and Justice Laboratory at the Stanley Manne Research Institute, is an expert in genetic testing and the legal and ethical questions that often arise with its application in medicine and law enforcement. In this episode she discusses her research and current events where genetic testing could potentially help or harm families.
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