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"The Hospital Refused to Recognize my Daughter as a Girl"
Manage episode 409190410 series 3528806
CARES Foundation द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री CARES Foundation या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
Welcome to another astonishing CAH story. In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into an uncertain world. Not only was her birthday during the height of the COVID-19 pandemic, but their newborn was diagnosed with salt-wasting CAH in a hospital with medical professionals who knew little to nothing about the condition.
David and Brianne open up about their harrowing journey from their daughter's adrenal insufficiency to her atypical genitalia. They explain the hardships of giving birth with COVID-19 protocols, including social distancing and the miscommunication it had caused. They also lament about the hospital staff's position of not recognizing their daughter as a girl with the recommendation that they wait to name their baby.
Join Stephanie and Dina as they uncover the shocking lack of understanding, empathy and support this resilient family endured in their 3rd trimester of pregnancy through the first weeks of their precious baby's life.
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