सर्वश्रेष्ठ Sickle Cell पॉडकास्टस (2024)

1
Tabatha McGee Means Business 39:23

20d ago39:23

39:23

On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs lik…

1
From Omaha to Global Health: Dr. Xu's Path in Hematology 48:16

1M ago48:16

48:16

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful men…

1
Sickle Cell + Aging (Feat. Ms. Pat McGill & Linda Wade) 38:06

2M ago38:06

38:06

In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the condition. Linda Wade, founder of the Mark Thomas Fo…

1
Empowering Lives: Dr. Simone Uwan’s Journey with Sickle Cell Disease 41:55

2M ago41:55

41:55

In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients…

1
Janie Davis, Director of Patient Advocacy at Agios 14:29

4M ago14:29

14:29

Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…

1
The Importance of Community-Based Organizations for the SCD Community 45:48

5M ago45:48

45:48

Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…

1
2023 SCAY Award Winners: Advocate of the Year + Digital Advocate of the Year (Feat. La'Shardae and Faith Adejei-Sarpong) - Pt. 2 35:33

5M ago35:33

35:33

Join host Maia Garrison as she speaks with passionate advocates shining a light on sickle cell disease. La'Shardae Scott, the 2022 SCAY Advocate of the Year, discusses her non-profit organization that bridges the gap by transitioning pediatric patients to adult sickle cell care. Faith Adjei-Sarpong, the Digital SCAY Advocate of the Year, shares how…

1
Hope and Healing: Conquering Sickle Cell with BMT 28:41

5M ago28:41

28:41

Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant that cured his sickle cell disease. Despite facing numerous obstacles and enduring many hardships, their …

1
The Warrior Poet: A Rising Star: Dr. Alex Glaros 27:44

6M ago27:44

27:44

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…

1
2023 SCAY Award Winners: Community Partner + Youth Advocates of the Year (Feat. Holly John and Ayana Johnson) - Pt. 1 42:43

6M ago42:43

42:43

Join hosts Cassandra Trimnell and Maia Garrison as they hear from Holly John, Senior Director of Patient Advocacy at Agios Pharmaceuticals, recognized as the SCAY Community Partner of the Year for her groundbreaking work integrating patient voices into drug development and advocacy. Also, meet Ayana Johnson, the SCAY Youth Advocate of the Year, a h…

1
Revving Up for Clinical Trial Awareness in the Motor City 46:54

7M ago46:54

46:54

On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…

1
Women and Sickle Cell Disease 11:31

10M ago11:31

11:31

On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…

1
Sickle Cell Advocacy with Miss Teen Virginia, Ayana Johnson 32:09

11M ago32:09

32:09

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are…

1
Sickle Cell + Bone Marrow Transplant 1:23:23

11M ago1:23:23

1:23:23

Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise. A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://si…

1
Replay: International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

1y ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Regina Hartfield of the SCDAA 29:24

1y ago29:24

29:24

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA). SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strive…

1
Blood, Sweat and Cells: Understanding The Sickle Cell Trait 12:22

1y ago12:22

12:22

This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status. Our guest, Dr. Sheinei Alan, sheds a light on understanding the distinction between sickle cell disease and the sickle cell trait. We'll explore family planning for couples who …

1
REPLAY: RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

1y ago47:16

47:16

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questi…

1
Strength and Resiliency: Parenting A Child with Sickle Cell Disease 16:48

1y ago16:48

16:48

In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell disease. Through his candid storytelling, listeners gain valuable insights into the profound challenges and triumphs faced b…

1
Cayenne Wellness 36:34

1+ y ago36:34

36:34

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” Learn more about Cayenne Wellness at https://cayennewellness.org SHOW DESCRIPTION …

1
Reproductive Health in Sickle Cell 23:17

1+ y ago23:17

23:17

On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each epis…

1
Juneteenth and World Sickle Cell Day 10:03

1+ y ago10:03

10:03

In this podcast we delve into the intersections of Juneteenth and World Sickle Cell Day in highlighting health disparities and promoting equity in our community. In addition, we'll take you on a fascinating audio tour of the high-tech and innovative Adult Sickle Cell Center at Inova Hospital, providing you with an exciting glimpse into the latest a…

1
International Legends of Sickle Cell: Professor Clarisse Lobo & Dr. Kleber Fertrin 32:05

1+ y ago32:05

32:05

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. SHOW DESCRIPTION Cheat Codes is…

1
Rising Stars in Sickle Cell: Dr. Oladipo Cole 33:43

1+ y ago33:43

33:43

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state. SHOW DESCRIPTION Cheat Codes is a podcast…

1
Legends of Sickle Cell - Dr. Obiageli Nnodu 37:19

1+ y ago37:19

37:19

Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with …

1
LIVE in New Orleans: A Red Cell Revolution 48:26

1+ y ago48:26

48:26

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…

1
Unboxing the future 8:12

2y ago8:12

8:12

How about the ability to predict a Sickle Cell crisis, and halt it, long before it had the chance to strike? Or perhaps take a pill that offers a cure by replacing the faulty gene with a new one? How about a potent drug made from African herbs proven to reduce pain or even specialised nutrition advice, medically proven to ensure a better quality of…

1
Finding Medicine with Dr Norris Igbineweka and Dr Mary Ansong 28:45

2y ago28:45

28:45

Health inequality is a major challenge both within and between countries, but what happens when the latest therapies are inaccessible to the countries that need them most? On this episode i'm joined by Dr Norris Igbineweka, a UK-based haematologist who's currently undertaking a PhD in gene editing for red blood cell diseases at Imperial University …

1
Sickle Cell and Love with Dr Olaniyi Owoeye 34:09

2y ago34:09

34:09

The theme of Sickle Cell and love is an unavoidable dilemma for many. On this episode, I caught up with Dr Olaniyi Owoeye, a consultant haematologist at the medical diagnostic company Synlab Nigeria. We explore his challenges on the theme and how advances in medicine could avoid heartbreak for many couples globally. *EVENT REGISTRATION* Join us on …

1
Lived experiences in Nigeria and the UK with Rochelle, Sonia and Chukwuma 35:25

2y ago35:25

35:25

In this episode, I catch up with Sonia, Rochelle and Chukuma on their experiences of living with Sickle Cell from the perspectives of the UK and Nigeria. We'll explore the good, the bad, and the ugly. *EVENT REGISTRATION* Join us on Rare Disease Day, February 28th 2023, for an online discussion and Q&A with some of the guests we’ve featured on the …

1
Unboxing the past and the present 6:55

2y ago6:55

6:55

From Water Clement Noel, a wealthy Caribbean student studying in America in 1904, to the metaphysical in Nigerian folklore, we explore the various explanations given to Sickle Cell over the years, and examine the latest treatments available today. *EVENT REGISTRATION* Join us on Rare Disease Day, February 28th 2023, for an online discussion and Q&A…

1
Replay: Legends of Sickle Cell. The Momma Bears 1:01:46

2y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022. SHOW DESCRIPTION Cheat Codes is a pod…

1
Coming up on Sickle Cell Unboxed 3:55

2y ago3:55

3:55

Sickle Cell Unboxed launches on February 6th! Coming up on this series... Episode 1: Unboxing the past and the present Episode 2: Lived experiences in Nigeria and the UK with Rochelle, Sonia and Chukwuma Episode 3: Sickle Cell and Love with Dr Olaniyi Owoeye Episode 4: Finding Medicine with Dr Norris Igbineweka and Dr Mary Ansong Episode 5: Unboxin…

1
Getting to Know Doctors Ahmar Zaidi & Mike Callaghan 37:14

2y ago37:14

37:14

On this episode, we’re turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We’ll get to know them a little better and learn about their journey into medicine and sickle cell disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with c…

1
Biba Tinga, Sickle Cell Disease Association of Canada 32:28

2y ago32:28

32:28

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segment…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium - Part 2 1:00:23

2y ago1:00:23

1:00:23

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted b…

1
A What Just Happened Episode of Cheat Codes with the Sickle Cell Consortium 39:21

2y ago39:21

39:21

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson. The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of s…

1
Legends of Sickle Cell. The Momma Bears 1:01:46

2y ago1:01:46

1:01:46

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community t…

1
Follow Your Heart 22:40

2y ago22:40

22:40

The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes Gaston about early research with hydroxyurea. Sickle cell disease (SCD) provider and warrior Dr. Titilope Fasipe tal…

1
Connections Across the Globe 24:14

2+ y ago24:14

24:14

Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical trials. International SCD researcher Dr. Solomon Ofori-Acquah shares the story of how he got into research and how …

1
Legends of Sickle Cell - Dr. Charles Jonassaint, Jude Jonassaint & Cassandra Trimnell 41:10

2+ y ago41:10

41:10

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and …

1
Everyone Has a Place 14:33

2+ y ago14:33

14:33

Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD expert care provider and researcher Dr. Michael DeBaun describes how he involves physicians from many other dis…

1
Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof) 58:13

2+ y ago58:13

58:13

For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telli…

1
Home Is Where the Care Is 21:25

2+ y ago21:25

21:25

Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes the benefits she experienced once she found a medical home. SCD experts share their experiences creating treatme…

1
Legends of Sickle Cell - Russell Ware, MD, PhD 44:18

2+ y ago44:18

44:18

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, an…

1
RISE UP for Sickle Cell Disease - A Warrior Panel 47:16

2+ y ago47:16

47:16

On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions the…

1
Fighting Racism From the Lab Bench to the Patient Bedside in Sickle Cell Research 17:40

2+ y ago17:40

17:40

Translational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational research and how it can directly help individuals living with SCD. Kyle Smith describes how acute chest syndrome impacts his day-to-day activities. Dr. …

1
Improving Emergency Care: The Painful Truth 17:23

2+ y ago17:23

17:23

Emergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This episode explores how education can help shift attitudes and how proper data and support can improve clinics. Shauna Whisenton describes an experience th…

1
Waiting for Mercy 22:37

2+ y ago22:37

22:37

Structural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and learned from her mistake. Host Dr. Wally Smith talks to several people living with SCD who have experienced bias first-hand, including ASH Research Co…

1
Chwechweechwe: Relentless Perpetual Chewing 29:33

2+ y ago29:33

29:33

Severe pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating pain a person living with SCD endures read by SCD care and research pioneer Dr. Marilyn Hughes Gaston. Host Dr. Wally Smith talks to Kyle Smith, an adv…

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Sickle Cell पॉडकास्टस

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