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Can I Butt In?

Bowel Research UK

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Brought to you by the charity Bowel Research UK, here we welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to butt in and share their experiences. Your host is Patient and Public Involvement Manager Sam Alexandra Rose. We’re picking a topic every episode and getting to the bottom of it.
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Sam rounds up the last 24 episodes of Can I Butt In? We take a look back at each episode, our guests, the topics, and insightful conversations with bowel cancer and bowel disease patients and researchers. Can I Butt In? is taking a break! We’ll see you again later on with a new host and a range of new guests and themes to dig into. Read the transcr…
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Sam rewinds to last year’s Big Bowel Event, resharing a session called PaRT Life. In this session, three members of the PaRT network discussed their patient experiences and their experiences of getting involved in research. The members are Steve Clark, Alicia Cropley, and Nigel Horwood. Sam also provides details on the upcoming Big Bowel Event 2024…
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In the second of this two-part series on the spread of bowel cancer to the peritoneum, Sam is joined by Becky Maskill and Rebecca (Bex) Halstead. Becky has experience of peritoneal metastases, and Bex is Lead Colorectal/Peritoneal Tumour Clinical Nurse Specialist at The Christie NHS Foundation Trust. Becky tells her patient story, Bex explains what…
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Sam is joined by Dr Meera Patel to talk about her research into the spread of bowel cancer to the peritoneum. Meera is an Academic Clinical Lecturer at The University of Manchester and a trainee bowel surgeon, splitting her time equally between her academic medical research work and her clinical practice treating patients in the Northwest of Englan…
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Sam presented at Oncology Professional Care conference on 22nd May 2024 and provides a rerun of those presentations in this episode. The first presentation is on patient and public involvement (PPI), including what it is, how it is done at Bowel Research UK, and debunking nine common PPI misconceptions. The second talk is based on Sam’s patient exp…
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Tonia Hickman and Daniel Peckham join Sam to discuss the connection between cystic fibrosis and bowel conditions such as bowel cancer. Tonia Hickman has cystic fibrosis and had part of her small bowel and some lymph nodes removed due to fibromatosis. Professor Daniel Peckham is Professor of Respiratory Medicine at the University of Leeds, an adult …
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Helen West, Public Patient Involvement & Engagement Officer at Guts UK, joins Sam to talk about the charities’ joint project, a diverticular disease priority setting partnership. Helen and Sam explain what a priority setting partnership is, what we’ve done so far, what’s going to happen, how you can get involved, and why we’re looking into divertic…
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In the second of this two-part series on “mini colonoscopies” performed using LumenEye, Sam is joined by Dr Ammara Hughes. Dr Ammara Hughes is a GP partner at Bloomsbury Surgery, Central London, and Clinical Director of Central Camden Primary Care Network. LumenEye was created by MedTech company SurgEease. Ammara explains how LumenEye is used at GP…
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Sam is joined by Mr Emilio Lozano to discuss a tool called LumenEye, which is used to perform what some refer to as “mini colonoscopies” in a range of scenarios. Emilio is a general surgeon with a special interest in anorectal neoplasia colorectal and general surgery in spinal injury patients and benign colorectal disease. LumenEye was created by M…
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Sam and guest Diane Kelsey draw attention to microscopic colitis – what is it, how is it different to ulcerative colitis, and how does it affect diet and lifestyle? Diane was diagnosed with microscopic colitis in February 2021 shortly after retiring from teaching, and she explains how her condition was diagnosed, what the symptoms were, how she man…
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Researchers Robert Kerrison and Gerard Cummins talk to Sam about Samplecam, an innovative new type of capsule endoscopy currently in the works. They explain their research on Samplecam, which is a video capsule endoscopy that will also be capable of taking samples of the bowel as it travels through it. They discuss what a video capsule endoscopy no…
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Sam is joined by Olivia Rose, Chief Marketing Officer at Ostique, to talk about a new app for people with stomas. Ostique Connect is a first-of-its-kind support platform for ostomates, providing the opportunity to connect with others for one-to-one peer support. Olivia and Sam discuss the development of the app and the valuable feedback ostomates h…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Steve Clark to discuss his research into the “nocebo” effect. Steve was diagnosed with stage 4 colorectal cancer in 2013 and has since become an active patient advocate. In 2017 he set up StriveForFive.org, a not-for-profit organization with the mission to gi…
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In a Rare Disease Day special, Sam provides an overview of several rare and lesser-known bowel conditions, including CIPO (chronic intestinal pseudo-obstruction), mesenteric plexitis, Hirschsprung’s disease, metastatic small bowel obstruction, paediatric IBD, and Enterocutaneous Fistula or ECF. She also explains the ultra-rare genetic condition con…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Pete Wheatstone to discuss his experiences of having bowel cancer while being self-employed. They talk about how bowel cancer symptoms, diagnoses, treatments, and long-term effects impact business for those who work for themselves. They also cover the differe…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Boddis to discuss the nuances of cancer language. What language does the media use to describe people with cancer, what do we say to each other in society, and how does that make us feel? Simon was diagnosed with bowel cancer in 2020 and has a permanent…
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In this episode of Can I Butt In, Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Jacqueline Black, a doctoral researcher at Kings College London with a background in health psychology. Some of her work is funded by Bowel Research UK, and they discuss how having a chronic illness can inflict stress on a …
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Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Louise Usher, a registered nutritionist, Crohn's disease patient and a guest Blogger for Bowel Research UK. She talks about her past experiences, how she became a registered nutritionist and how that allows her to help others with Crohn's disease. They also…
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Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Alicia Toon, Marketing and Communications Executive at Odin Vision. Together, they provide a simple explanation of what AI (Artificial Intelligence) is and what colonoscopies involve. They emphasize the benefits of combining AI with colonoscopies for both d…
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Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Emma Tuschick and Karen Manton. Emma Tuschick is a doctoral candidate and research associate at Teesside University, while Karen Manton is an expert in bipolar disorder based on personal experience. They are part of a research team investigating the experie…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Nigel Horwood, a guest blogger at Bowel Research UK and a Crohn's disease patient. They discuss the importance of organising your medical records appropriately and establishing strong relationships with your medical experts. Additionally, Nigel gives some tip…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Carding, Professor of Mucosal Immunology at the University of East Anglia and head of the Food Microbiome and Health Research programme at Quadram Institute in Norwich, along with Adele Sayers, a consulting colorectal surgeon at Sheffield Teaching Hospi…
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In this episode of Can I Butt In, Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Matt Black and Steven Jones to discuss how workplace culture and environment can impact workers with illnesses and disabilities. Additionally, they discuss what arrangements can be made to improve communication and accommodat…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Eamonn Dunne, the Partnerships and Projects Development Manager for Thomas Pocklington Trust, a national charity supporting blind and partially sighted people. In this episode, they discuss the difficulties that people with visual impairments have when taking…
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Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Sharon Applin and Charles West to discuss pelvic exenteration surgery and its impact on quality of life. Sharon had this surgery due to squamous cell cancer and Charles “Charlie” West is conducting research into the effects of this surgery known as empty pelv…
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Find out what's coming up on "Can I Butt In?", the podcast from Bowel Research UK. We welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to "butt in" and share their experiences on a range of topics. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.…
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