Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
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BloodStream Media द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री BloodStream Media या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
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Player FM ऐप के साथ ऑफ़लाइन जाएं!
Ep. 34: vWD Research Update - w/ Dr. Christopher Ng, M.D.
Manage episode 248652301 series 1362347
BloodStream Media द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री BloodStream Media या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
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44 एपिसोडस
Manage episode 248652301 series 1362347
BloodStream Media द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री BloodStream Media या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।
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44 एपिसोडस
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Ask The Expert - A BloodStream Media Podcast
1 Ep 40 - TO THE FUTURE w/ Patrick James Lynch 55:51
55:51
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55:51Our guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are excited to announce the new path for our expert interviews, because they’re not going away! Listen in with Patrick and Amy as they share the new and exciting things coming from Bloodstream Media! Welcome to Episode 40, or To the Future! The final episode of the Ask The Expert Podcast! Check out all the podcast offerings from Bloodstream Media: https://www.bloodstreammedia.com/ Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058…
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Ask The Expert - A BloodStream Media Podcast
1 Ep. 39 - w/ Dr. Len Valentino (Part 2) - Get to Know the Expert 22:20
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22:20Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO the National Hemophilia Foundation, Dr. Len Valentino! We’ll learn how Dr. Valentino got his start, what lessons he learned from treating patients, his interests in the global disparity of care, and his thoughts of the Michael Jordan documentary, The Last Dance! Join us to get to know Dr. Valentino a little better! Welcome to Episode 39 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast! Check out the weekly webinar series provided by the National Hemophilia Foundation here: The National Hemophilia Foundation: https://www.hemophilia.org/ Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058…
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Ask The Expert - A BloodStream Media Podcast
1 Ep. 39 - w/ Dr. Len Valentino (Part 1) - Become an Expert 32:41
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32:41The National Hemophilia Foundation announced new leadership in Dr. Len Valentino weeks before the COVID-19 outbreak and his unique position to guide our community during this unprecedented time has been welcome. Dr. Valentino joins us on Ask the Expert this month to share a bit of his story and his thoughts on the pandemic could affect the bleeding disorder community. Dr. Valentino shares how NHF is addressing the current COVID pandemic, NHF’s national research agenda, and how COVID could impact the shift in treatment in hemophilia. We’ll also chat about the Bleeding Disorder Conference going virtual this year, so join us for a can’t miss episode of Ask the Expert! Welcome to Episode 39 - or our Dr. Valentino Episode - of the Ask The Expert Podcast! Check out the weekly webinar series provided by the National Hemophilia Foundation here: The National Hemophilia Foundation: https://www.hemophilia.org/ Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058…
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Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert 20:17
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20:17Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begins her tenure at the organization. Sharon shares how she became involved in non-profit work, her passion and philosophy on fundraising, and how she became involved within the bleeding disorder community! Join us to hear more about Sharon’s personal journey and what makes her tick! A fun episode of Ask the Expert! Welcome to Episode 38 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast! Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak: Hemophilia Federation of America: https://www.hemophiliafed.org/ HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/ HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/ HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/ NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/…
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Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 38 - w/ Sharon Meyers, HFA (Part 1) - Become an Expert 37:58
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37:58During this period of unprecedented turmoil and uncertainty, the bleeding disorder community has found comfort in the Hemophilia Federation of America’s (HFA) messaging and voice. Newly-minted CEO of HFA, Sharon Meyers, joins us to share the behind the scenes work HFA has done to prepare statements, resources, and education during the COVID pandemic. She shares how HFA has set up a COVID-19 Relief Fund, as well as utilizing their foundational Helping Hands financial assistance program to provide support to community members during the crisis. Sharon stops by to share her vision for HFA going forward and how increased communication with NHF sets both organizations up for success. Join us for another great episode of Ask the Expert! Welcome to Episode 38 - or our Meet Sharon Meyers Episode - of the Ask The Expert Podcast! Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak: Hemophilia Federation of America: https://www.hemophiliafed.org/ HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/ HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/ HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/ NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/…
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Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 37 - w/ Brian Ragaishis (Part 2) - Get to Know the Expert 19:34
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19:34Join us for our “Get to Know the Expert” episode featuring Brian Ragaishis! Brian is a teenager with vWD who created the website Live Smart, Play Smart, a community where other teens affected by bleeding disorders can share their story. In today’s episode, we hear about what it was like for Brian when he was diagnosed with vWD and how he felt isolated from his friends. How did he manage and why did he think it was important for other teens to share their story? Check out this great episode and if you know an amazing teen affected by a bleeding disorder doing incredible things for their community, nominate them for the Teen Impact Award at www.teenimpactawards.com Welcome to Episode 37 Part 2- or our Get to Know the Expert Episode - of the Ask The Expert Podcast! Check out the following resources mentioned in our episode: Nominate a teen for the Teen Impact Awards: https://www.teenimpactawards.com/ Apply for the Adam Lynch Scholarship here: https://www.teenimpactawards.com/scholarship To learn more about Live Smart, Play Smart and share your story: https://www.livesmartplaysmart.com/ To learn more about Bleeding Disorders Awareness Month and how you can contribute: https://redtiecampaign.org/…
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Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 37 - w/ Brian Ragaishis- Live Smart, Play Smart 24:15
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24:15So much of our community programming and education is focused around teenagers and yet oftentimes our teenagers seem like mysteries to us. What is it like being a teen with a bleeding disorder and what would make their lives easier? To celebrate Bleeding Disorders Awareness Month we asked teen, Brian Ragaishis, to join us on Ask the Expert to share why he created Live Smart, Play Smart, a website that creates community for other teens affected by bleeding disorders by telling their story. Brian, a former Teen Impact Award winner, joins us to share how the idea was born and why it was so important to connect with his peers. A unique episode of Ask the Expert! Welcome to Episode 37 - or our Live Smart, Play Smart Episode - of the Ask The Expert Podcast! Check out the following resources mentioned in our episode: Nominate a teen for the Teen Impact Awards: https://www.teenimpactawards.com/ Apply for the Adam Lynch Scholarship here: https://www.teenimpactawards.com/scholarship To learn more about Live Smart, Play Smart and share your story: https://www.livesmartplaysmart.com/ To learn more about Bleeding Disorders Awareness Month and how you can contribute: https://redtiecampaign.org/…
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Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 36 - w/ Dr. Jonathan Roberts (Part 2) - Get to Know the Expert 19:44
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19:44A
Ask The Expert - A BloodStream Media Podcast
1 ATE - Ep. 36 - w/ Dr. Jonathan Roberts (Part 1) 30:21
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30:21A
Ask The Expert - A BloodStream Media Podcast
1 Ep. 35: New Year’s Resolutions Watch-Outs - w/Debbie de la Riva 43:14
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43:14A
Ask The Expert - A BloodStream Media Podcast
1 Ep. 34: vWD Research Update - w/ Dr. Christopher Ng, M.D. 59:20
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59:20A
Ask The Expert - A BloodStream Media Podcast
1 Ep. 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D. 52:42
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52:42As we enter into a new phase of hemophilia treatments and products, the questions continue to grow and become more complicated by the day. Check out the latest episode of Ask the Expert, where we welcome Dr. Michael Wang, M.D. from the University of Colorado Hemophilia and Thrombosis center to discuss the current status of revolutionary potential treatments like gene therapy and non-factor replacements. Dr. Wang answers listeners own questions about the clinical trial process, research updates, what the medical community is encouraged about, as well as concerns being raised. In this true paradigm shift in how we view hemophilia treatment, the only consistent message from all sides as been - educate yourself and keep asking questions. Join us for a can’t miss episode of Ask the Expert! Welcome to Episode 33 - or our Paradigm Shift in Hemophilia Treatment Episode - of the Ask The Expert Podcast! For the latest in clinical trial outcomes follow the National Hemophilia Foundation https://www.hemophilia.org/ “Strong gene therapy candidates are encouraged to have meticulous logging skills and the availability to be seen every week for a period of time.” Dr. Michael Wang, M.D. “The future will be about individualized choice based on lifestyle and the type of protection you want in a treatment.” Dr. Michael Wang, M.D. “We will begin to understand mild/moderate patients in depth going forward because of the treatment shift due to sheer volume.” Dr. Michael Wang, M.D.…
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Ask The Expert - A BloodStream Media Podcast
1 Ep. 32: Surprise Billing 101 w/ Miriam Goldstein and Sonji Wilkes - October 28, 2019 56:54
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56:54Imagine doing your due diligence for an upcoming medical procedure by double checking your facility and providers are in-network with your insurance plan, only to later find out that a provider treating you (e.g., an anesthesiologist or radiologist) does not participate in your health plan’s network after you receive a huge out-of-network bill out of nowhere. This is one example of a healthcare issue known as “surprise billing” and it could cost you and your family thousands of dollars. Ask the Expert joins HFA Director of Policy, Miriam Goldstein, to break the issue down for our understanding and explains potential solutions Washington is debating to fix this issue. Also joining us is HFA Director of Advocacy, Sonji Wilkes, a community member who faced this issue firsthand when her son was born and recently shared her story with Congress. A can’t-miss episode of Ask the Expert for all our rare disease advocates! Welcome to Episode 32 - or our Surprise Billing 101 Episode - of the Ask The Expert Podcast! If you receive a bill from an out-of-network provider for planned procedure or have further questions about surprise billing, contact HFA through their website: www.hemophiliafed.org If you have been experiencing issues with your insurance company, HFA wants to hear your story! Project CALLS [Creating Alternatives to Limiting and Lacking Services] is an opportunity for you to share your story and help the entire bleeding disorders community. HFA collects stories from across the country, collates the data, identifies trends, and uses the information to help policymakers and providers better understand and meet the needs of our community. Participate here: https://www.hemophiliafed.org/for-patient-families/navigate-insurance/project-calls/ “Surprise medical bills can arise in an emergency when the patient has no ability to select the emergency room, treating physicians, or ambulance providers.” - Miriam Goldstein, HFA Director of Policy “Unexpected medical bills, including surprise medical bills, lead the list of expenses most Americans worry they would not be able to afford.” -Miriam Goldstein, HFA Director of Policy “Don’t be discouraged, patients will always have the louder voice. Our job is to tell decision makers, this issue matters to me. It’s up to us.” - Sonji Wilkes, HFA Director of Advocacy…
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Ask The Expert - A BloodStream Media Podcast
1 Ep. 31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019 1:03:48
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1:03:48As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, signing up for clinical trials, and/or sharing our thoughts about what it is like living with a bleeding disorder. So what makes this new initiative from the National Hemophilia Foundation (NHF) different? Join us for a conversation with NHF Head of Research, Michelle Witkop and Research Nurse Specialist, Maria Santaella as they share the details of MyBDC, a community-powered registry aimed at capturing the patient experience. MyBDC is a comprehensive, personalized registry that focuses on the entire family unit. Want to learn more? Join us for an in-depth conversation about MyBDC on Ask the Expert! Welcome to Episode 31 - or our In-Depth Look into MyBDC Episode- of the Ask The Expert Podcast! Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment or changes in physical activities. For more information and to enroll in MyBDC, click the link: mybdc.hemophilia.org For specific questions email research@hemophilia.org The enrollment process will take 2 to 3 minutes. Each family member, caretaker and/or patient will need to enroll. The initial survey will take 20 to 30 minutes. All members of the family unit are encouraged to enroll. Patients, siblings, grandparents, caretakers, parents are able to enroll and create their own account. Currently, the platform only accepts adults, but a children’s portal is being created. NHF has a newsletter, and research information is included. To sign up for the newsletter, visit www.hemophilia.org and scroll to the bottom of the page for the link. BloodFeed: https://www.bloodfeed.com Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui…
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Ask The Expert - A BloodStream Media Podcast
1 Ep. 30: Hemophilia Foundation of Michigan - Camp Bold Eagle Team - August 26, 2019 1:01:33
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1:01:33Hemophilia Foundation of Michigan’s Camp Bold Eagle is turning 50 this year! Camp Bold Eagle is the longest running summer camp for kids and teens with bleeding disorders in the United States and to celebrate this incredible accomplishment and to relish in the joy of summer camp, Ask the Expert invited staff of the Hemophilia Foundation of Michigan to join us as they reminisce about the history of camp, the amazing leadership that is developed at camp and share the evolution of Camp Bold Eagle. Whether you are a parent struggling with sending your child to camp for the first time or a seasoned camper that can’t wait to see your friends next summer, join us for a conversation about the history of bleeding disorder camps and unique power camp has to foster independence in all of us. Welcome to Episode 30 - or our Summer Camp Special! Episode - of the Ask The Expert Podcast! Find a bleeding disorder camp in your area: Hemophilia Federation of America Camp Directory National Hemophilia Foundation Camp Directory “The concept back then was to see what they could do rather than couldn’t do.“ - Sue Lerch “Many chronic disease camps are designed to forget about disease, but hemophilia camp was designed to engage with the disorder to develop independence.” -Sue Lerch “Camp is not about the place - it’s about the people.” - Tim Wicks…
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प्लेयर एफएम वेब को स्कैन कर रहा है उच्च गुणवत्ता वाले पॉडकास्ट आप के आनंद लेंने के लिए अभी। यह सबसे अच्छा पॉडकास्ट एप्प है और यह Android, iPhone और वेब पर काम करता है। उपकरणों में सदस्यता को सिंक करने के लिए साइनअप करें।