Duchenne UK pushes tech to its limits to help those with the condition

Somewhere on Earth: The Global Tech Podcast

Somewhere on Earth द्वारा प्रदान की गई सामग्री. एपिसोड, ग्राफिक्स और पॉडकास्ट विवरण सहित सभी पॉडकास्ट सामग्री Somewhere on Earth या उनके पॉडकास्ट प्लेटफ़ॉर्म पार्टनर द्वारा सीधे अपलोड और प्रदान की जाती है। यदि आपको लगता है कि कोई आपकी अनुमति के बिना आपके कॉपीराइट किए गए कार्य का उपयोग कर रहा है, तो आप यहां बताई गई प्रक्रिया का पालन कर सकते हैं https://hi.player.fm/legal।

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Duchenne UK pushes tech to its limits to help those with the condition

This week we see the impact one charity is having on development of assistive technology for the degenerative condition Duchenne muscular dystrophy (DMD), which affects more than 300,000 people around the world. The technology is playing a vital role in keeping teenage dreams alive.

A mother and son tell their story; he has DMD, she’s founded a charity to tackle some of the big challenges in drug development in their search for a cure for DMD. In 13 years, Duchenne UK has raised more than £27 million and used this money to fund pioneering medical research, create a DMD clinical research network of hospital sites across the country, set up a national programme establishing best practice across all the disciplines involved in DMD clinical care, and develop innovative assistive mobility technologies, such as the arm-assist Elevex, to support the independence of people with DMD.

Somewhere on Earth meets Eli Crossley - musician, pupil, teenager, whose rock band was the youngest ever to perform at Glastonbury, Eli’s mum, co-founder and Chief Executive of Duchenne UK, Emily Reuben OBE, and Hayley Philippault, Head of Technology at Duchenne UK.

The programme is presented by Gareth Mitchell and the studio expert is Nick Kwek.